IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
Donate
Now
Double the Donation
About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Research Funding
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Research Funding
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
Donate
Now
IDefine Blog
Categories
ALL
ALL
CSO Corner
IDefine News
Uncategorized
KS Speech Study Results Being Analyzed
IDefine News
- June 16, 2023
CSO Corner Volume 4: Creating a Disease Concept Model
CSO Corner
-
Opportunity to establish KS biorepository
IDefine News
- May 19, 2023
CSO Corner Volume 3: Biorepositories
CSO Corner
-
Meet IDefine’s new director of development
IDefine News
-
Southern Roots Reunion Recap
Uncategorized
- April 23, 2023
Prof. Kleefstra recruited to new hospital
Uncategorized
- April 22, 2023
IDefine Europe helps connect Kleefstra Syndrome communities
IDefine News
- March 20, 2023
CSO Corner Volume 2: ICD-10 Codes
CSO Corner
- February 25, 2023
A day to highlight humanness, acknowledge progress
IDefine News
- February 22, 2023
←
older
newer
→