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IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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  • About Kleefstra Syndrome
    • What is Kleefstra Syndrome
    • Newly Diagnosed?
    • Testing and Diagnosis
    • Therapies and Early Interventions
    • Worldwide Map
  • Caregiver Community
    • Newly Diagnosed?
    • Boston Childrens Hospital
    • BCH Visit Preparation
    • Radboud
    • Resources
  • Research
    • Our Mission
    • Research Funding
    • Funding Opportunities
    • Get Involved
    • For Researchers
    • Scientific Advisory Board
    • Natural History Study
  • News + Events
    • Blog
      • Newsletter Archive
    • 2022 Conference
    • 2021 Conference
    • Organize a Meet Up
    • Launch a Fundraiser
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ALL CSO CornerIDefine NewsUncategorized

Passionate, experienced KS grandparent assumes leadership of Kleefstrasyndrome.org

IDefine News  - September 16, 2021

Maryland Mom Shares Story of Struggles As Daughter Ages

IDefine News  - August 13, 2021

Meet Paul Smith — KS Dad and Scientific Advisor to IDefine

IDefine News  - July 16, 2021

Meet Tanja Zdolsek Draksler – KS Mom and Scientific Researcher

IDefine News  - July 14, 2021
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IDefine
IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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