IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
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Funding Opportunities
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For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
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Store
About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Research Funding
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
Donate
Now
IDefine Blog
Categories
IDefine News
ALL
CSO Corner
IDefine News
Uncategorized
IDefine’s Margo Metzger Joins EveryLife Foundation for Rare Diseases
IDefine News
- August 20, 2023
Sleep study results expected at end of summer
IDefine News
- July 16, 2023
Meet Disease Concept Model Leader Kristen Connors
IDefine News
-
KS Speech Study Results Being Analyzed
IDefine News
- June 16, 2023
Opportunity to establish KS biorepository
IDefine News
- May 19, 2023
Meet IDefine’s new director of development
IDefine News
-
IDefine Europe helps connect Kleefstra Syndrome communities
IDefine News
- March 20, 2023
A day to highlight humanness, acknowledge progress
IDefine News
- February 22, 2023
IDefine Impact Report 2022
IDefine News
- January 21, 2023
KS census number a top priority in 2023
IDefine News
- January 18, 2023
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