Events

Kickstart the Kleefstra Clinic

IDefine is working with Boston Children’s Hospital and Kleefstra Syndrome experts from around the globe to establish the world’s first KS Center of Excellence, or “Kleefstra Clinic.”

The Kleefstra Clinic will centralize the latest research and treatment for KS, providing access to innovative care to patients in person and online, and it will serve as a template for establishing other centers around the world.

​We’re raising $75,000 by the end of 2020 to establish this incredible resource for the KS community.

Help us Kickstart the Kleefstra Clinic by donating or hosting a fundraiser.

Meet the Founders

Sunday, October 25
4 p.m. ET

​Join IDefine’s founders as they discuss how they started this new organization, their current projects, and their hopes for the future.​

​Panelists include:

Geoff Rhyne
Darrick Reed
Mason Harrell
Erik Scheeff
Clark Valberg
Andy Klump

Kleefstra Syndrome Q&A with Dr. Sid

Thursday, November 12
12 p.m. ET

​Dr. Srivastava, known to many as “Dr. Sid,” has seen more Kleefstra Syndrome patients than any other doctor in the US. Join us for an opportunity to ask questions and learn more about the work he and his team are doing to better understand KS and to establish the KS Center of Excellence at Boston Children’s Hospital.

Be sure to subscribe to our newsletter for regular updates about our fundraising opportunities. 

If you are interested in fundraising, contact us at unlock@idefine.org