IDefine is a nonprofit organization dedicated to discovering life-changing treatments and cures for those with intellectual disabilities stemming from genetic disorders.
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About IDefine
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About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
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Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
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About IDefine
Our Story
Our Mission
Our Team
Our Partners
About Kleefstra Syndrome
What is Kleefstra Syndrome
Newly Diagnosed?
Testing and Diagnosis
Therapies and Early Interventions
Worldwide Map
Caregiver Community
Newly Diagnosed?
Boston Childrens Hospital
BCH Visit Preparation
Radboud
Resources
Research
Our Mission
Research Funding
Funding Opportunities
Get Involved
For Researchers
Scientific Advisory Board
Natural History Study
News + Events
Blog
Newsletter Archive
2022 Conference
2021 Conference
Organize a Meet Up
Launch a Fundraiser
Store
Donate
Now
IDefine Blog
Categories
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ALL
CSO Corner
IDefine News
Uncategorized
CSO Corner Volume 2: ICD-10 Codes
CSO Corner
- February 25, 2023
A day to highlight humanness, acknowledge progress
IDefine News
- February 22, 2023
IDefine Impact Report 2022
IDefine News
- January 21, 2023
Conference provides insights for rare disease organizations
IDefine News
- October 14, 2022
Coming up big for Kleefstra Syndrome Down Under
IDefine News
- August 15, 2022
Connections, information gained from Family Conference
IDefine News
- July 16, 2022
Special attention given to KS siblings
IDefine News
- July 15, 2022
IDefine attends Ultragenyx Rare Entrepreneur Bootcamp
IDefine News
- May 16, 2022
Registration deadline approaching for Family Conference
IDefine News
- April 15, 2022
It Takes a Village Returns
IDefine News
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